We have had a few difficulties since CHS had his stroke, not unexpected I know. He has has physical therapy and psychological therapy. He attends a therapy gym and a stroke club, I volunteer at the stroke club alternate weeks, I help in the kitchen, this way I'm not in the same room as CHS but I can talk to people who are experiencing stroke care.
Yesterday I read the article below, it explains a lot.
://www.dailymail.co.uk/femail/article-6901171/I-know-agony-James-Cracknells-wife-lived-losing-husband-hes-alive.html
9 comments:
This was like a punch in the stomach for me ...ten years ago my husband suffered a head injury not once but twice, both times when falling off his bicycle. Yes, he had a helmet on, but the falls were at high speed and as the doctor said. "at least he is alive" Over the preceding ten years, all our children left home, more and more friends have drifted off, and we have become totally estranged from our oldest son and family. At first I thought it was some kind of narcissistic personality disorder, but now it seems more and more like post concussion...Everything is about him, what he wants and needs and his explosive rants about things are wearing me down. His short term memory is terrible and that also worries me. Early dementia can come with these type of brain injuries...Hugs,
Barb from Canada.
Oh Barb, hugs it's a nightmare isn't it.
So awful. They keep this quiet. Why? xxx
I have known for years that anyone who suffers a stroke has their worst traits intensified. My FIL was a classic case, at his best he was impatient. After his stroke he was almost uncontrollable......which made caring for him very difficult. If you did not respond to what he wanted straight away he would throw the pram after the toys!! Shout, scream stamp his feet and hang on anything within reach. The same happened if you tried to get him to do something he did not want to do. His worst thing was standing in the middle of a very busy main road, waving his stick and shouting, using language I had no idea he knew, because the cars would not stop for him to cross to the bus stop!!
As im sure you know im stuck in this nightmare as well , my other half is selfish demanding and at times aggressive , its just the brief flashes of what he was that keep me going and it tears my heart out when he realises what hes doing and he gets a look of horror on his face . I love him to bits but ive faced that he will be the death of me , recent health wobbles on my part and his constant nasty comments are driving me quietly mad . Somedays i hope he ends up in care in a pissy high seat chair.
I have been lucky although my husband had a very severe stroke 4 1/2 years ago , apart from his anxiety his personality has not altered and he is always thanking me for looking after him. I feel sorry for all of you whose partners have suffered PC as this is almost a bereavement.
Justin's, I think they keep it quiet because there is nothing that can be done. If it was talked about then some sort of treatment would be expected.
Anne it's a terrible thing for people to deal with.
Kate, it sounds like we are both in the same boat. Hugs
Pam it is so nice to hear of someone who hasn't had to deal with this.
Thanks for this link, it was hard to read and recognise some of the traits I see in my DP.
Sometimes he is almost his old self, but the "self-ishness" is real, and he doesn't seem to be able to be interested in my experiences any more, won't ask about my day etc but wants to tell me all about the minutiae of his.
I suppose that I am now reconciled to a different way of being, but it is hard to explain this to others.
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