Saturday, 8 October 2022

Running away to the circus!

Or should I say staggering in the general direction!

There was a circus on the village green where my oldest daughter lives so she took me along. It was a very small circus but great fun. There were ladies in spangly outfits a ringmaster, three clowns and a lady on a bike high in the air.

I had a lovely time, poor little Teddy who is 7 wasn't feeling well so he had lots of cuddles. I haven't seen Arnie the dog for a long time either so he had lots of cuddles too.

Steve decided not to come as he's not keen on the circus so he stayed home to look after Beano.

It was cheap and cheerful and such good fun.

Friday, 7 October 2022

Rent

We paid the rent again today, there is still no news on our completion date.

Tomorrow I'm going to the circus with DD1 and her family, Beano will stay home with Steve.

Monday I'm spending the day at DD2's as she is out and needs someone to be there when the girls get home.

Explanation for Marlane

 I use a large magnifier to enable me to see words on the screen. I am not blind yet, I just have visual disturbance. I hope this helps.

Thursday, 6 October 2022

Thank you

Thanks for all the comments.

I'm reluctant to put a tension pole up in case I mark the wall. It would also mean buying 2 sets of curtains that won't fit anywhere in our next place.

Property is at such a premium in this area that I cannot find anywhere that will allow a short term let, most places insist on a  1 to 2 year let. Also they would not allow me to keep Beano.

Col, if I demand to be allowed to put curtains up I'm pretty sure I'd be asked to leave as there are other people waiting to move in here.

Ellen I can't see the audiology dept providing cochlea implants, but I will ask at my next appointment.I

I hope I've answered all your comments, I apologise if I've missed any.

Macular traction and vestibular schwanoma.

I have Macular traction, this is where the macular becomes misshapen and it gets stuck. This causes distorted vision. It can be released by surgery which allows the macular to regain its correct shape and the vision improves. I have macular traction, not macular degeneration which is a different problem. I had surgery to release the traction in my left eye, it failed, it cannot be done again. I then developed the same traction in my right eye. I wasn't offered the surgery this time. I wouldn't have accepted it if I had. I am not blind, I have some very distorted, blurred vision. Nothing more can be done.

I think I have vestibular schwanoma, it is a form of tumour. I was diagnosed by an audiologist who was overruled by a more senior audiologist. The senior audiologist explained that vestibular schwanoma was not diagnosed at my age as surgery would be too expensive.

So I'm losing my eyesight and my hearing, I'm desperate to hang on to my hearing as being deaf is very isolating. I understand that is hard work trying to communicate with a deaf person. Steve has very little patience with me so most of our interactions are short questions. Am I hot or cold, what times tea, etc. Steve is particularly difficult to understand, I used to rely on lip reading but he covers his mouth with his hands or talks to me without facing me. He gets irritable if I remind him so I don't usually bother. I can't follow conversations in noisy places, I can't follow children's conversations as they are too high pitched, so I miss my grandchildren a lot. I'm hoping to access some help when we get in to our f!at, but I don't hold out much hope.

Wednesday, 5 October 2022

An update

The weather is turning chilly and damp, it's overcast today and windy. I think the cottage is going to get very cold over winter as the landlord has decided against putting curtains up.

My daughter is keeping on the solicitors case with regards to our flat but it is having little effect. The holdup is with the company that owns the flats and they are in no rush to complete.

We are paying £1200 a month rent, it's a fair rent for what we have, a bedroom, bathroom and an all in one lounge,kitchen, diner. We cannot rent on the open market as we have no history and we'd need to rent for a one year minimum. We were paying the same for the bedsit above the garage but I really struggled with the stairs there as there was no banister and they were quite steep.

Obviously we'd like to move as soon as possible as every month we stay here is eating into our savings. Mind you, if we'd stayed on the boat we'd be in a worse fix. The mooring fees have skyrocketed, a friend of Steve's phoned him last week, his mooring fees went from £299 pcm to £659 which is a hell of jump.

I've asked for her another referral to the audiology dept. The last one didn't materialise. Jennie phoned on my behalf, to start with she was told I should just "put up and shut up". At my age I needed to realise that bits of me aren't going to work as they did.

Unfortunately my eyesight was damaged by an attempt to repair the macular traction, that eye is now irretrievably damaged. The other eye has developed the same problem but I don't fancy letting the surgeons having another go! 

So I rely on my hearing which has deteriorated recently, one audiologist suggested a reason, vestibular schwanoma. This was some years ago but nothing was done. The head audiologist informed me that treatment wasn't available at my age. They don't want to waste money on someone who is too old to make a useful contribution to life!

And so I battle on, pissed off and battle scarred.

Monday, 3 October 2022

Evening all.

 Another long gap between posts, I'm really sorry.

I'm really struggling to think of something to write about.

Heaven knows how long it will be before we can get into our flat.

The place we are staying is lovely but it's incredibly expensive and the rent is eating into the money we have to get things done on our flat.

A match made in heaven

I went for a drink with my daughter and my youngest son he's recently bought his first house, he mentioned that his dad had sent him a l...